Your kid has an incurable disease, now what?
In January, when we discovered that Jack had Osteogenesis Imperfecta, it was nothing short of traumatic. Just a month earlier, I had gone through unmedicated labor for the fourth time. I was much older than the last time I’d done that and frankly, it was miserable. I’d spent a day in the hospital, trying to keep it together as I sent my baby off for a circumcision for the very first time and again when we discovered that Jack’s legs were unmistakably bowed and his left arm not moving properly.