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infusion

February iPhone recap.

March 8, 2018 by sueboo

I rarely post to Instagram, Facebook even less, so I feel like I should slurp a few pictures off my phone to demonstrate that February actually happened.  Here goes nothing.

Rachel and Eve played a lot of basketball.  Keyword: a lot.  Wait, that’s two words.

Anna and Lily sang in the junior high benefit concert.  Anna sang a solo for the third year in a row – and rocked it, naturally.


Jack endured another three days of infusions.  He looks pretty happy about it, right?  The kid is a model patient, I tell you.  He takes that needle like a man.  Whatever that means.

We kept Valentine’s Day simple (it was Jack’s third day of infusions).  Tim brought me lunch at the infusion center and I managed to eek out a few heart-shaped pancakes for breakfast.  (I might have also hand-written love notes for each of the “loves” in my life).

Eve designed her very own Valentine box with almost zero help from the parents.  Yay for self-directed children!  I’d like to think that I train them up that way, but it’s very possible that, in a family of seven, our kids have given up on trying to get our undivided attention.  Ah well, necessity IS the mother of invention.  Right?

We celebrated Chinese New Year in true Egbert fashion: with friends, homemade Chinese food, and a food fear factor contest.  This year’s selection of “goodies” from the Asian grocer were particularly delectable.  Dried squid, grass jelly drink, banana tofu, sardines in sauce, to name a few.  Can you tell by the look on my lovely daughters’ faces?  Yum.


Lily opened her first checking account, a rite of passage in our home that she was eagerly anticipating.  That girl is ALL about independence.

Tim took me to the opera for Madame Butterfly.  The music was beautiful, as expected (Puccini) but the story?  Oh boy, what a downer.

Jack is following in his sister Anna’s footsteps and has earned himself what we lovingly refer to as “the belt” at bedtime every night.  Too many mornings of a wet bed and a nude toddler warranted his new accessory.

Eve took advantage of the spring-like weather and assembled a hobo stick full of food for an afternoon out in the field behind our property.  Oh, I’m so glad she hasn’t outgrown the wonder of outdoor adventures.

Last but not least, Grandma and Jill surprised us with a quick visit!  The perfect break to the winter doldrums.  We took a walk on the Greenbelt to soak up some much needed sunlight.  It was cold, but our Vitamin D was replenished.


Posted in: Everyday life Tagged: basketball, chinese new year, diaper belt, grandma, infusion, jill, opera idaho, valentine's day

Thank heaven for good insurance.

October 16, 2017 by sueboo

October brought more than gorgeous fall foliage and fruit harvest.  Lily’s seizures had returned, though different than before and it was time to get some diagnostics on what was going on.  We scheduled an EEG to figure it all out.  A week later, we got a call from the technician who administered the test, informing us that all of the measurements taken had completely disappeared from their files.  Wait, what?!!  She said that, in her many years of employment, EEG results had only disappeared one other time.  Lucky Lily,  She got to go in twice, which is no small thing because it means having to deprive oneself of sleep before the test in order to induce seizures.  She was a pretty awesome sport about it, thankfully.


Jack also got a pamidronate infusion during October.  He was an absolute champ and barely whimpered when they inserted the IV needle.  I couldn’t believe the change I saw in him and it was heartening to see him mature before my very eyes.  That was the easy part, though.  For three days I got to chase the active toddler around with an IV pole – not exactly a cake walk.  At least he can now sit through an episode of Daniel Tiger’s Neighborhood without interruption.  For once I am truly thankful for screen time.

Posted in: Everyday life, Osteogenesis Imperfecta Tagged: EEG, infusion, Jack, Lily, medical, pamidronate

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